Wednesday, October 13, 2021

IT KEEP RIGHT ON A HURTING ... Johnny Tillotson 
 I cry myself to sleep each night
 Wishing I could hold you night
 life seems so empty since you went away
 The pillow where you'd lay your head 
 Now holds my lonely tears instead
 And it keeps right on a-hurtin' since you're gone  
Bill and I always enjoyed listening to music particularly from the '50s and '60s. Hadn't heard this tune for a long time ... seemed appropriate at the moment ... as it's what I do.

 
Sleep and Parkinson's Sleep disturbance is a very common feature of Parkinson's with a reported frequency of 60-90%. Sleep changes are challenging for both the person with Parkinson's and their sleep partner leading to fatigue and impacting on the quality of life. (Easier to deal with once you have a diagnosis and understand - but frustrating, annoying, when you don't)
 Sleep disturbances associated with Parkinson's include:
 Bed mobility changes 
 Rapid Eye Movement Behaviour Disorder
 Restless Leg Syndrome
 Sleep Apnoea Sleep fragmentation (broken sleep)
 Vivid dreams and nightmares 
Bed Mobility changes: Parkinson's affects automatic skills such as getting in and out of bed, rolling over and moving up and down the bed. Muscle rigidity, especially of the trunk, adds to this problem and can result in impaired bed mobility overnight. The use of satin nightwear or satin sheets is helpful. A review by an occupational therapist is recommended. They can introduce strategies and equipment which will be of benefit. A medical review of medications may assist with overnight mobility. (Bill had been assessed recently by OT and a new bed plus other equipment was to be purchased through his My Age Care package, unfortunately, he ended up in care before this happened - our waterbed looks like seeing it's 40th birthday now)!! 

Connection today was with my Tuesday Friends at hydro - today Margaret joined us for the first time. Hanging out for when the restrictions are lifted and we can enjoy coffee, toasties, and hot chips after our exercise.

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